LISTA DE GRUPOS DE FACEBOOK PARA ENFERMEDADES
MITOCONDRIALES
grupos de Facebook para los pacientes
me ha parecido oportuno transcribir una relacion de grupos de facebook en todo el mundo, obtenido de 'Pacientes mito International' http://www.mitopatients.org/links
esto no hacer ver que no estamos sólos.
- AEPMI: AEPMI familias: https://www.facebook.com/groups/60750279276068/ (spanish)
- AMDF: Australian Mitochondrial Disease Foundation: https://www.facebook.com/groups/44299119727/ (English)
- BOKS: BOKS vzw: https://www.facebook.com/groups/292738690935752/ (dutch)
- The Lily Foundation: The Lily Family Mitochondrial Disease Support Group: https://www.facebook.com/groups/lilyfamilymitosupport/ (english)
- Mitocon: AMICI DI MITOCON: https://www.facebook.com/groups/120185648043280/ (italian)
- Mitocon: Insieme per lo studio e la cura delle malattie mitocondriali: https://www.facebook.com/groups/37493683308/ (italian)
- UMDF: United Mitochondrial Disease Foundation: https://www.facebook.com/groups/umdfgroup/
- Lebers Hereditary Optic Neuropathy (LHON): https://www.facebook.com/groups/219765024858400/ (english)
- Leigh network: https://www.facebook.com/groups/203975279619098/ (english)
- MELAS support: https://www.facebook.com/groups/MELASSUPPORT/ (english)
- MELAS Rare Disease: https://www.facebook.com/groups/16939010167/ (english)
- Kearns Sayre Syndrome & Chronic Progressive External Ophthalmoplegia: https://www.facebook.com/groups/ksscpeo/ (english)
- CPEA/KSS: https://facebook.com/groups/397788546984359/ (english)
- MERFF: https://www.facebook.com/groups/272992249423720/ (english)
- PDCD Caregivers: https://www.facebook.com/groups/866318513458303/ (english)
- PDCD Parents and Friends: https://www.facebook.com/groups/pdcdkids/ (english)
- MitoAction: https://www.facebook.com/groups/22185295570/ (english)
- Our lives with Nina and Darin and mitochondrial Leigh disease story: https://www.facebook.com/groups/143162239153587/ (english)//
- Mito Matters UK: https://www.facebook.com/groups/mitomattersuk/ (english)
- Mito Info: https://www.facebook.com/groups/mitoinfo/ (dutch)
- Ouders van kinderen met een energiestofwisselingsziekte: https://www.facebook.com/groups/414238315292893/ (dutch)
- Mitochondrial Disease Awarenss and Education: https://www.facebook.com/groups/1442691972612628/ (english)
- Mito Friends (Teens and young adults): https://www.facebook.com/groups/135098276569058/ (english)
- Mito Families!: https://www.facebook.com/groups/185684528113483/ (english)
- Mitochondrial & Metabolic Disease Nutrition Discussion: https://www.facebook.com/groups/62319180185/ (english)
- Mito Adult Support: https://www.facebook.com/groups/mitosupportworldwide/ (english)
- Mito Café: Support for Adults with Mitochondrial Disease: https://www.facebook.com/groups/139235679524129/ (english)
- Miopatia Mitocondrial: https://www.facebook.com/groups/miopatiamitocondrial/ (portuguese)
- Handicap Maladie Rare - myopathies mitochondriales: https://www.facebook.com/groups/128598200492128/ (french)
- Cytopathies Mitochondriales: https://www.facebook.com/groups/918353721529626/ (French)
Prof. Dr. Fernando Galan